High 5 4 Kids: Khaleb Phillips - WFXG FOX 54 - News Now

High 5 4 Kids: Khaleb Phillips

GROVETOWN, GA (WFXG) -

Khaleb Phillips is only 9-years-old and he's already been through a lot.

"He is a very strong little boy because he has gone through more in his 9 years of life than most adults have. So he's able to deal with a lot of things," said Kiowana Phillips, Khaleb's mom.  

Khaleb was born with a rare neurological disorder called Moebius syndrome that affects the 6th and 7th cranial nerves . He's unable to move his face and the disorder affects his speech.

Phillips said because of the syndrome he's gone through numerous surgeries,  doctor's visits, and sleep studies, but you'll never catch him complaining.

"Sometimes I just don't know how he does it, because for me as a mother, it's a lot on me so I kind of feel like he would express it in the way he acts and the way he talks to me but he doesn't. It just seems like it doesn't even bother him at all," said Phillips.

That's why she wrote a book about the first 9 years of his life. She titled it, The Boy Who Smiles With His Heart.

"Some people can have corrective surgery to smile, but with Khaleb I chose not to so he cannot physically smile, with his mouth he's always smiling, he's always laughing, so I feel like he's smiling with his heart," said Phillips.

She said his unique smile touches the lives of her, and everyone around him and he's well deserved for this week's high five.

For more information about The Boy Who Smiles With His Heart, visit Khaleb's Facebook page.

Copyright 2014 WFXG. All rights reserved.

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